Our goal is to raise funds where they’re needed most, and we are relying on your generosity to make a real difference. If you would like to get more heavily involved in The Rare Initiative, we’d love to chat. In the meantime, here are the answers to our most frequently asked questions.
The RARE Initiative needs your help
Every day, members of the Termeer Center deliver exceptional care and develop therapeutic innovations with game-changing implications. We're making great progress, but we need to do more. With your help, we will.
Invest in Breakthrough Research
The development of drugs that target specific genomic mutations is game-changing. It means cancers can be treated and detected sooner, and with certain gene mutations found to be common in patients suffering from a range of cancers, one drug could benefit patients with a variety of diagnoses. By testing patients for their specific gene mutations, we can identify new markers and match treatment to more people.
Your investment will help take the research of Dr Goyal and Dr Juric’s teams over the line, giving hope to thousands of patients with IDH1. FGFR and PIK3CA mutations as well as those we are yet to identify. What’s more, it will support the development of targeted therapy options, with individual tumor immunoprofiles offering a new landscape for the treatment of rare cancers.
Evolve through Clinical Trials
Our collaboration between one of the world’s leading research facilities and a top major cancer hospital means we can significantly shorten the time between scientific discoveries and patient treatment. With crosstalk between the clinic and the lab, our goal is to have a bedside to bench back to bedside approach, taking questions from the clinic, studying them in the lab, and using discoveries to identify new tailor-made therapies for patients. We are dedicated to helping patients get access to these clinical trials, not only to save their lives but to contribute to the invaluable research that brings hope to others. It typically costs between $25,000 and $35,000 to enrol one patient into a Phase 1 clinical trial. As a result, it costs close to $1M at minimum to launch and complete an end-to-end Phase 1 study. Your donation to The Rare Initiative will help to ensure as many people as possible have access to the clinical trials we need to bring life-saving drugs to market.
This is a Moment of Opportunity
We believe that the collaboration of diverse, highly motivated minds leads to creative, out-of-the-box solutions and that nothing is impossible when we work together. Your philanthropic support will fuel this vision and help to propel us into a new era of innovation in cancer treatment, driving new discoveries and creating life-changing clinical paradigms for cancer patients around the world. Thank you for joining our mission. Together we will change the way cancer is treated.
Any Questions?
We're here to help.
About Your Donation
Is my donation tax deductable?
Contributions are tax deductible to the extent allowed by the laws of your country. Consult your local tax professional for specific details.
What are Indirect Costs?
In order to advance this research program, there are both direct costs that cover the specific research activities themselves, and indirect costs associated with the resources and infrastructure that make it possible for the research activity to take place. These include costs of the space, heat, light, accounting, and personnel that are difficult to measure and charge directly to any one grant. These indirect costs are significant (currently an additional 68.5 percent over the direct research costs) and, when not covered by the gift, must be paid for by the hospital when the gift is accepted. To allow as much of the gift money as possible to be used for direct costs of the project to be undertaken, the hospital assesses only a 15 percent indirect rate from the gift fund and covers the remaining indirect costs (currently 53.5 percent of the direct costs) from its operating funds.
Indirect costs are not fees, but rather an integral part of the cost of doing research. MGH is dependent upon the recovery of its indirect costs in order to maintain the infrastructure necessary to support its programs and projects. Drs. Juric and Goyal would not be able to employ, house staff, or manage funds were it not for these materials, resources and services paid for by indirect cost reimbursement.
Can I donate in an alternative currency?
You can donate from any country, but as you are giving to an organization located in United States, the donation will be processed and receipted in USD and deposited to a US bank account.
Can I donate in honor or in memory of someone?
Of course. On the donation form, just check the box beneath your donation amount and fill out the details.
Can I pledge stock?
Yes! You can pledge stock giving you further tax advantages. Please email [email protected] for details.
About The Rare Initiative
Will the Initiative support other rare cancers in the future?
Yes! We will continue to fund rare cancer initiatives, solving one problem at a time until we find a cure.
Can I nominate a Warrior?
Yes you can! Please email [email protected] to get started.
Can I be more heavily involved?
Please contact the team at [email protected] and let us know how you’d like to be involved.
How do I contact you?
Please email [email protected] with any general inquiries.
